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Guide for patients and loved ones
The first days, preparing for visits, diaries and emergencies. Choose a topic — each one opens on its own page.
Where am I nowThis section helps you find your place: are you at diagnosis, in treatment, recovering or in follow-up?
New diagnosis: first stepsA diagnosis changes life in an instant. In the first days a few clear steps bring stability.
Checklist for the first 30 daysThe first month brings the most change. This checklist helps you not to forget the important things.
Write down the name of the diagnosisThe exact name of your diagnosis is the key to the right information, the right treatment and the right questions.
List of medicines and allergiesDuring treatment you take many medicines. A clear list prevents mistakes.
Hospital bagWith leukemia you may need to go into hospital unexpectedly. A packed bag reduces stress.
Treatment calendarCycles, tests, appointments and medicines: remembering it all is hard. A calendar takes the load off.
Side-effect diaryRecording side effects helps your doctor manage them better.
Test results notebookKeeping results in one place helps you see trends and talk with your doctor.
How to protect yourself todayA few simple steps today greatly reduce your risk of infection.
What to eat todaySimple, safe and tasty choices for today, even when appetite is low.
Getting the home readyDuring treatment home should be a safe refuge. A few changes make this easier.
Emergency numbersIn an emergency there is no time to search for a number. They need to be ready in advance.
For a husband or wifeA spouse is often the closest support. The role is both love and a heavy load.
For a parentYour child’s diagnosis is one of the hardest pieces of news. You are not alone, and you do not need to know…
For an adult son or daughterA parent’s illness can change roles: now you are the one caring. This is both love and a new responsibility.
For the caregiverThe caregiver is the unseen part of the team. Your health is part of the treatment too.
How to talk with your doctorA good conversation is part of good treatment. A little preparation makes every appointment more useful.
My medical fileWhen all documents are in one place, a new doctor, an emergency department or a second opinion can help faster and…
Travel and documentsTravel during and after treatment is possible, but it needs planning.
Money and insurance: the basicsTreatment costs can be a serious worry. Asking early often makes it possible to find help.
Emergency warning signsDuring treatment, some signs need help without waiting. Knowing them in advance protects life.
The patient roadmapThe leukaemia journey has stages. Knowing where you are makes the next step clearer.
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