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About LEUKEMIA.WORLD

What is LEUKEMIA.WORLD?

LEUKEMIA.WORLD is an independent, free information project in Azerbaijani, Russian and English for people facing leukemia and those close to them. This topic explains briefly and openly why the site was created, who it is for, how the content is prepared and what the site is not.

Last updated: ~5 min read
Three translucent streams of light in teal, warm red and gold on a dark navy background, intertwining and meeting around a bright blood cell at the centre.
Figure 1.Concept: three languages, one aim — helping people understand leukemia.

01Short answer

LEUKEMIA.WORLD brings together, in one place, plain, honest and well-sourced information about leukemia in three languages: Azerbaijani (the main language), Russian and English. The site was created by someone who has lived through leukemia himself and went through four courses of chemotherapy and intensive care at the national haematology centre in Baku. Its aim is to help patients and families who have just heard the diagnosis to understand the disease, prepare for conversations with their doctor and feel less alone. Articles are based on material from recognised bodies such as the NCI, ACS, ESMO, NCCN and WHO. The site is not a medical service: it does not diagnose, does not give personal treatment advice and does not replace your doctor.

02Simple explanation

Why was the site created? Someone who has just heard the diagnosis often faces scattered information written in other languages, sometimes frightening or wrong. Clear and reliable information about leukemia in Azerbaijani is especially scarce. Filling that gap is the main reason for the project.

Who created it? The site was created by someone who has lived through leukemia himself, and whose journey continues. He went through four courses of chemotherapy and hard days in intensive care at the national haematology centre in Baku. The questions he asked from his hospital bed became the topics of this site.

Who is it for? For newly diagnosed patients, people in treatment and people in remission, and for their families, friends and caregivers. Articles are written for readers without medical training, while the science sections help those who want to know more.

Stories and songs. The songs the author wrote during and after his treatment are collected on a separate page: Melody of Hope.

Read more. About the project: About LEUKEMIA.WORLD. How the content is prepared: Editorial policy. The limits of the site: Medical disclaimer.

03Scientific explanation

Sources: every article is based on patient materials and clinical guidelines from recognised bodies: the US National Cancer Institute’s (NCI) PDQ summaries, the American Cancer Society (ACS), ASCO’s Cancer.Net, the ESMO and NCCN patient guides, the WHO and the scientific literature. Each article ends with a list of the sources used and the date of the last update.

Editorial principles: medicines are named only by their international (generic) names, doses are not given, statistics are never invented and the country they come from is stated. Texts are written in a calm, clear and hopeful tone, but difficult subjects are not hidden. The content is based on reputable medical sources listed under each article; it does not replace a doctor, and the editors welcome review and corrections from practising clinicians through the Contact page.

How to recognise reliable information: MedlinePlus, from the US National Library of Medicine, suggests asking when you assess a website: who runs it, where the information comes from, when it was last updated, and is the site trying to sell you something? We try to answer these questions openly on every page.

04What happens in the body?

Our aim

Understanding the disease makes it less frightening. We want every reader to understand their diagnosis better, ask their doctor sharper questions and feel better prepared on the road through treatment.

What you will find here

The content is organised into thirteen sections: from the cell and blood formation to diagnosis, treatment, infection prevention, nutrition, emotional support, life after treatment, research, countries, a medical glossary, questions and answers, and a guide for patients.

Softly glowing blood cells rising upwards on a dark navy background, with a warm dawn light opening on the horizon.
Figure 2.Dawn after a long night: the site grew out of the experience of someone who walked the road to recovery.

How every article is built

A short answer, a simple explanation, a scientific explanation, what happens in the body, key terms, key points, frequently asked questions, sources and the update date. This helps you find what you need quickly in any topic.

What the site is not

LEUKEMIA.WORLD is not a medical service. We do not diagnose, we do not make personal treatment plans and we do not replace your doctor or hematology team. In an emergency, contact your team or emergency services straight away.

Found a mistake?

Accuracy matters a great deal to us. If you notice a mistake, outdated information or something unclear, write to us through the Contact page; we review every message.

05How is the content prepared?

The road of an article (simplified).

A question — Real questions from patients and families.1A questionReal questions from patients and families.
Sources — Recognised bodies and guidelines.2SourcesRecognised bodies and guidelines.
Text in three languages — Plain, accurate, calm.3Text in three languagesPlain, accurate, calm.
Checking — Sources, links, a clinician’s eye.4CheckingSources, links, a clinician’s eye.
Clear informationNo medical training needed.
Three languagesAzerbaijani, Russian and English.
SupportYou are not alone on this road.

06LEUKEMIA.WORLD at a glance

QuestionAnswer
What is it?An independent, free information project about leukemia
In which languages?Azerbaijani (main), Russian and English
Who is it for?Patients, families, friends and caregivers
Sources?NCI, ACS, Cancer.Net, ESMO, NCCN, WHO and the scientific literature
What is it not?Not a medical service and not a substitute for a doctor’s advice
Contact?Through the Contact page

* The project is not affiliated with any hospital, pharmaceutical company or government body.

07Key terms

Patient information
Medical information written in plain language for people without medical training.
Clinical guidelines
Evidence-based treatment recommendations from specialists.
Generic name
The international name of a medicine, rather than its brand name.
Source
The reliable material that the information in an article comes from.
Editorial policy
The rules describing how information is prepared and checked.
Medical disclaimer
A statement that the site does not replace medical advice.
Remission
No signs of leukemia on standard tests after treatment.
Hematology team
The doctors, nurses and other specialists who treat leukemia.

08Key points

  • LEUKEMIA.WORLD is an independent information project about leukemia in three languages.
  • The site was created by someone who has lived through leukemia himself, and whose journey continues.
  • Its main aim is to help you understand the disease and prepare to talk to your doctor.
  • Articles are based on material from recognised bodies.
  • No doses are given, and no personal advice.
  • The site does not replace your doctor.
  • Stories and songs are on a separate page.
  • If you spot a mistake, write to us.

09Frequently asked questions

Is the site free?

Yes, all articles are free. To cover hosting and development costs, the site may show advertising; it does not influence the content, and advertised products are not our recommendations.

Is the site linked to any hospital or company?

No. LEUKEMIA.WORLD is an independent project, not affiliated with any hospital, pharmaceutical company or government body.

Can I ask a question about my own situation?

We do not give personal medical advice. For questions about your situation, please talk to your hematologist. The articles on the site can help you prepare for that conversation.

How reliable is the information?

Every article is based on material from recognised bodies, with sources and the update date shown. The content is based on reputable medical sources listed under each article; it does not replace a doctor, and the editors welcome review and corrections from practising clinicians through the <a href="/pages/en/contact.html">Contact page</a>. Even so, medicine changes quickly, so always make decisions together with your doctor.

Why three languages?

In Azerbaijan people read in different languages, and doctors often use Russian and English terms. Three languages help the information reach more people and make it easier to find equivalent terms.

How can I support the site?

Share a useful article with someone who needs it, and write to us if you spot a mistake. That is the greatest support for the project.

10Questions for your doctor

Take these questions to your appointment. The ones you save are collected on the “My questions” page and stay on this device only.

  1. Does the information I read on this site apply to my situation?

  2. What is your view on the topic I read about here?

  3. Which other sources would you recommend I read?

  4. Which topics should I discuss with you separately?

My questions

12Sources

  1. MedlinePlus (U.S. National Library of Medicine). Evaluating Health Information
  2. MedlinePlus (U.S. National Library of Medicine). Evaluating Internet Health Information: A Tutorial
  3. National Cancer Institute (NCI). PDQ® Cancer Information Summaries
  4. National Cancer Institute (NCI). Leukemia — Patient Version
  5. National Cancer Institute (NCI). NCI Dictionary of Cancer Terms
  6. National Cancer Institute (NCI). Common Cancer Myths and Misconceptions
  7. American Cancer Society. Leukemia
  8. Cancer.Net (ASCO). Cancer.Net — Doctor-approved patient information from ASCO
  9. ESMO. ESMO Patient Guides
  10. NCCN. NCCN Guidelines for Patients
  11. World Health Organization (WHO). Cancer — fact sheet
  12. NHS (UK). Acute myeloid leukaemia
  13. Leukaemia Care (UK). Leukaemia Care — information and support
Medical disclaimerThis information is for educational purposes only and does not replace medical advice.
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